Status | Study |
Completed |
Study Name: Biomarkers in Vascular Ehlers-Danlos Syndrome Condition: Vascular Ehlers-Danlos Syndrome Date: 2014-05-07 |
Completed |
Study Name: Wearing a Compression Garment for Patients With Hypermobility Type of Ehlers-Danlos Syndrome Condition: Ehlers-Danlos Syndrome Hypermobility Type Date: 2014-05-07 Interventions: Device: short-sleeved vest CICATREX SED®) Each patient wears a compression custom-made garment (sho |
Completed |
Study Name: IGF-I Stimulation of Collagen Synthesis in Ehlers-Danlos Patients Condition: Ehlers-Danlos Syndrome, Classic Date: 2011-09-27 Interventions: Drug: mecasermin 0,1 ml mecase |
Completed |
Study Name: Head Circumference Growth in Children With Ehlers-Danlos Syndrome Who Develop Dysautonomia Later in Life Condition: Ehlers Danlos Syndrome External Hydrocephalus Date: 2011-06-05 |
Completed |
Study Name: Vascular Fundus Changes in Patients With High Probability of Chronic Cerebrospinal Venous Insufficiency (CCSVI) Condition: Ehlers-Danlos Syndrome Multiple Sclerosis Date: 2011-05-12 |
Completed |
Study Name: National Registry of Genetically Triggered Thoracic Aortic Aneurysms and Cardiovascular Conditions Condition: Marfan Syndrome Turner Syndrome Ehle Date: 2011-03-22 |
Completed |
Study Name: Riboflavin Corneal Crosslinking for Brittle Cornea Syndrome and Ehlers-Danlos Syndrome Type VI Condition: Brittle Cornea Syndrome Ehlers-Danlos Syndrome Type 6 Date: 2011-03-01 Interventions: Drug: Riboflavin 0.1%, applied |
Completed |
Study Name: Non-Invasive Quantitative Imaging of Human Local Arterial Wall Elasticity Using Supersonic Shear Imaging Condition: Healthy Volunteers Vascular Ehlers Danlos Syndrome Date: 2010-03-19 Interventions: Other: SSI and SphygmoCor® evaluations |
Recruiting |
Study Name: Molecular Bases of Response to Copper Treatment in Menkes Disease, Related Phenotypes, and Unexplained Copper Deficiency Condition: Menkes Disease Occipital Horn Syndrome Date: 2008-12-18 Interventions: Drug: Copper Histidine A physiologically acceptable form of the trace metal copper. |
Completed |
Study Name: Studies of Heritable Disorders of Connective Tissue Condition: Ehlers-Danlos Syndrome Stickler Syndrome Date: 2005-12-27 |